THESE ARE SOME OF THE WORDS THAT ONE YOUNG ADULT USED TO DESCRIBE WHAT IT CAN FEEL LIKE TO LIVE WITH A BURN INJURY.
Transition StoriesBurn injuries, can be a life changing experiencing. They can involve long stays in hospital and further treatment after discharge for many years. Treatment over the long term can involve scar management, physiotherapy and further surgery.
Liverpool
We do not have our own burns club currently, but support children and young people to attend the Manchester Children’s Burns Camps (see below for details).
We provide opportunities for families to attend a Family Weekend, organised in collaboration with the Children’s Burn Trust, the Firefighter’s Charity and the other paediatric burns services in the Northern Burn Care Network.
The Liverpool paediatric burns service has run a support group and activity days for young people in the past. These have been on hold recently, but we are keen to start offering this type of support again with provisional plans to run family fun days and a Christmas party.
Manchester
Manchester Children’s Burns Camp held its first weekend camp for a small group of children in 1993 and now holds week long camps each year for both younger (5-10 years) and older children (10-16 years) who have been referred by our multidisciplinary burn care team. It also arranges day activities spread throughout the year and participates in two Family Weekends organised by the Children’s Burns Trust, the Fire Fighters Charity and other paediatric burns services in the Northern Burn Care network. The Manchester Young Adult Burn Camp (16-24 years) started in 2008 and is organised in collaboration with the adult burns service in Manchester.
www.manchesterburnscamps.co.uk
North East and Cumbria
The Grafter’s Club
We are a club for children and their families in the North East and Cumbria who have suffered a burn injury. Anyone up to the age of 18 years old is welcome to join us no matter how long ago you had your injury. We organise trips, fun days and a Christmas party. We have our Burn camp and attend the National Jamboree. We are always around for a chat and to help in anyway we can.
We have a newsletter called ‘The Telegraft’ which is published twice a year.
Contact: thegraftersclub@nuth.nhs.uk
Sheffield
Theo’s Burns Club (Sheffield Burns Club on BBA)
We currently provide support and activities for burn injured children aged 0 to 16 years but are looking to extend this to 18 years. We do age relevant day activities and attend National Burns Jamboree with 5 children.
Contact: lindsay.marris@sch.nhs.uk or kathryn.topham@sch.nhs.uk
Wakefield
The Pinderfields Burns Club The Burns Club provides a forum through which young people who have had major burn injuries can meet to have fun and share experiences. Various club activities are held throughout the year.
Pinderfields Burns Club: Tel: 0844 8118110.